Cerebral Palsy #CPDAY Edition ♿

Cerebral Palsy is considered a neurological disorder caused by a non-progressive brain injury or malformation that occurs while the child’s brain is under development. Cerebral Palsy primarily affects body movement and muscle coordination. Though Cerebral Palsy can be defined, having Cerebral Palsy does not define the person that has the condition.

Definition of Cerebral Palsy

While Cerebral Palsy (pronounced seh-ree-brel pawl-zee) is a blanket term commonly referred to as “CP” and described by loss or impairment of motor function, Cerebral Palsy is actually caused by brain damage. The brain damage is caused by brain injury or abnormal development of the brain that occurs while a child’s brain is still developing — before birth, during birth, or immediately after birth.

Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. It can also impact fine motor skills, gross motor skills and oral motor functioning.

What is Cerebral Palsy?

Cerebral Palsy is the result of a brain injury or a brain malformation. Individuals with Cerebral Palsy were most likely born with the condition, although some acquire it later.

It was once thought that Cerebral Palsy was caused by complications during the birthing process. While this does happen, it is now widely agreed that birthing complications account for only a small percentage, an estimated 10 percent, of Cerebral Palsy cases.

Current research suggests the majority of Cerebral Palsy cases result from abnormal brain development or brain injury prior to birth or during labor and delivery. Accidents, abuse, medical malpractice, negligence, infections, and injury are some known risk factors that may lead to Cerebral Palsy.

Cerebral Palsy causes physical impairment

An individual with Cerebral Palsy will likely show signs of physical impairment. However, the type of movement dysfunction, the location and number of limbs involved, as well as the extent of impairment, will vary from one individual to another. It can affect arms, legs, and even the face; it can affect one limb, several, or all.

Cerebral Palsy affects muscles and a person’s ability to control them. Muscles can contract too much, too little, or all at the same time. Limbs can be stiff and forced into painful, awkward positions. Fluctuating muscle contractions can make limbs tremble, shake, or writhe.

Balance, posture, and coordination can also be affected by Cerebral Palsy. Tasks such as walking, sitting, or tying shoes may be difficult for some, while others might have difficulty grasping objects.

Other complications, such as intellectual impairment, seizures, and vision or hearing impairment also commonly accompany Cerebral Palsy.

Every case of Cerebral Palsy is unique to the individual

Every case of cerebral palsy is unique to the individual. One person may have total paralysis and require constant care, while another with partial paralysis might have slight movement tremors but require little assistance. This is due in part by the type of injury and the timing of the injury to the developing brain.

Cerebral Palsy is non-life-threatening

With the exception of children born with a severe case, Cerebral Palsy is considered to be a non-life-threatening condition. Most children with Cerebral Palsy are expected to live well into adulthood.

Cerebral Palsy is incurable

Cerebral Palsy is damage to the brain that cannot currently be fixed. Treatment and therapy help manage effects on the body.

Cerebral Palsy is non-progressive

The brain lesion is the result of a one-time brain injury and will not produce further degeneration of the brain.

Cerebral Palsy is permanent 

The injury and damage to the brain is permanent. The brain does not “heal” as other parts of the body might. Because of this, the Cerebral Palsy itself will not change for better or worse during a person’s lifetime. On the other hand, associative conditions may improve or worsen over time.

Cerebral Palsy is not contagious; it is not communicable

In the majority of cases, Cerebral Palsy is caused by damage to the developing brain. Brain damage is not spread through human contact. However, a person can intentionally or unintentionally increase the likelihood a child will develop Cerebral Palsy through abuse, accidents, medical malpractice, negligence, or the spread of a bacterial or viral infection.

Cerebral Palsy is manageable

The impairment caused by Cerebral Palsy is manageable. In other words, treatment, therapy, surgery, medications and assistive technology can help maximize independence, reduce barriers, increase inclusion and thus lead to an enhanced quality of life.

Cerebral Palsy is chronic

The effects of Cerebral Palsy are long-term, not temporary. An individual diagnosed with Cerebral Palsy will have the condition for their entire life.

Every case of Cerebral Palsy is unique to the individual. One person may have total paralysis and require constant care, while another with partial paralysis might have slight movement tremors but require little assistance. This is due in part by the type of injury and the timing of the injury to the developing brain.

Frequently Asked Questions

When a parent learns his or her child has Cerebral Palsy, they begin to define and understand the condition. Questions arise. Words such as disability, impairment, special needs, and handicap are helpful when used correctly. However, the same words – when misunderstood and misused – can be hurtful, offensive and harmful.

Is Cerebral Palsy an impairment?

Yes. Impairment is the loss or limitation of function. Impairment is a condition that limits a person to some degree.

Individuals diagnosed with Cerebral Palsy have a neurological condition which primarily causes physical impairment involving limitation or loss of function and mobility. They experience difficulty with muscle coordination, muscle control, muscle tone, reflexes, balance or posture. They may have difficulty with fine or gross motor skills. Their facial muscles may be affected.

Individuals with Cerebral Palsy often have associative and co-mitigating conditions that also impose additional challenges, such as a learning impairment, seizures, and vision or hearing loss.

A person can have impairment without having a disability.

Is Cerebral Palsy a disability?

Sometimes. A disability is an impairment that substantially limits a person’s ability to perform life activities within a range comparable to someone the same age and circumstance. A disability may include impairments that limit mobility, hearing, sight, and communication.

The term “disability” is primarily used to qualify a person fairly for government benefits, access to healthcare, special education programs, workers compensation, workplace accommodations, travel accommodations, or health insurance.

All individuals with disability have impairment. However, a person can have impairment without disability. In other words, their impairment does not restrict them from performing a life activity. For example, a person who wears glasses or contact lenses to correct nearsightedness has impairment, but does not have a disability; the impairment — nearsightedness — is correctable and therefore does not restrict performance. However, a person declared legally blind is unable to perform certain functions, such as driving, and hence is said to have a disability that restricts performance.

Is Cerebral Palsy a disease?

No. Cerebral Palsy is not a disease - it is actually a term used to describe a range of conditions that typically cause physical impairment.

Is Cerebral Palsy a handicap?

A handicap is a situational barrier or obstacle that limits activity or restricts participation, often temporarily. The World Health Organization defines two types of handicaps:

Activity limitations are difficulties an individual may have in executing a task or action.

Participation restrictions are problems an individual may have in involvement in life situations.

A handicap is apparent only when the barrier or obstacle exists. For a person who uses a wheelchair for mobility, stairs and narrow hallways may present a handicap. Ramps, elevators, and alternate hallways remove the handicap.

Today, much is being done to remove barriers and obstacles for individuals with impairment. WHO and U.S. government agencies guided by the Americans with Disabilities Act, collaborate with employers, retailers, transportation sources and private groups on a mission to identify obstacles and barriers. They also work to reduce or eliminate handicaps. These organizations promote inclusion, accessibility, and accommodation standards.

Do individuals with Cerebral Palsy have special needs?

Individuals with conditions that may require additional supports, help, or technology are generally considered to have special needs. The term “special needs” generally refers to the need to assist, support, adapt, modify or accommodate a person in order to provide barrier-free, equal access to experiences, events, buildings, information, participation and inclusion that is afforded a person without disability or impairment. Accessibility and inclusion are rights afforded to everyone – with or without disability – to participate in activities of daily living, education, transportation, employment, travel, public spaces, and housing, to name a few

#Disabilitywatch #cerebralpalsyweek

Blount's Disease ("Tibia vara")

Blount's Disease or Tibia vara is a condition that causes a person’s lower leg to turn inwards, resembling a bowed leg.
But unlike bow legs, which can often straighten out as a child grows, Blount’s disease slowly gets worse. It can cause severe bowing of the legs and a lifetime of disability.

What causes Blount’s disease?
While the cause is unknown, Blount’s disease occurs mostly in young children and is especially prevalent in developing countries. It is thought Blount’s disease develops due to weight pressing on growing bones. The shin bone then fails to develop normally.

Treatment
Children under three-years are usually treated with braces to prevent severe bowing. If braces don’t work, or if the child isn’t diagnosed until they’re older, surgery is usually required. If the leg can be corrected it should work properly, and the child can usually run and play with other children and go to school.

Disability can be prevented so seek early assistance.

Autism Awareness

Disability is an evolving concept, it results from the interaction between persons with impairment, attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others.

Person's with disabilities include those who have long-term physical,mental,intellectual or sensory impairments which in interaction with the various barriers may hinder their full and effective participation in society on equal basis with others.

Autism spectrum disorders (ASD) are characterized by social-interaction difficulties, communication challenges and a tendency to engage in repetitive behaviors. However, symptoms and their severity vary widely across these three core areas. Taken together, they may result in relatively mild challenges for someone on the high functioning end of the autism spectrum. For others, symptoms may be more severe, as when repetitive behaviors and lack of spoken language interfere with everyday life.

While autism is usually a life-long condition, all children and adults benefit from interventions, or therapies, that can reduce symptoms and increase skills and abilities. Although it is best to begin intervention as soon as possible, the benefits of therapy can continue throughout life.

Social Challenges
Typically developing infants are social by nature. They gaze at faces, turn toward voices, grasp a finger and even smile by 2 to 3 months of age. By contrast, most children who develop autism have difficulty engaging in the give-and-take of everyday human interactions. By 8 to 10 months of age, many infants who go on to develop autism are showing some symptoms such as failure to respond to their names, reduced interest in people and delayed babbling. By toddlerhood, many children with autism have difficulty playing social games, don’t imitate the actions of others and prefer to play alone. They may fail to seek comfort or respond to parents' displays of anger or affection in typical ways.

Communication Difficulties
By age three, most children have passed predictable milestones on the path to learning language. One of the earliest is babbling. By the first birthday, most typically developing toddlers say a word or two, turn and look when they hear their names, point to objects they want or want to show to someone (not all cultures use pointing in this way). When offered something distasteful, they can make clear – by sound or expression – that the answer is “no.”

Repetitive Behaviors
Unusual repetitive behaviors and/or a tendency to engage in a restricted range of activities are another core symptom of autism. Common repetitive behaviors include hand-flapping, rocking, jumping and twirling, arranging and rearranging objects, and repeating sounds, words, or phrases. Sometimes the repetitive behavior is self-stimulating, such as wiggling fingers in front of the eyes.

The tendency to engage in a restricted range of activities can be seen in the way that many children with autism play with toys. Some spend hours lining up toys in a specific way instead of using them for pretend play. Similarly, some adults are preoccupied with having household or other objects in a fixed order or place. It can prove extremely upsetting if someone or something disrupts the order. Along these lines many children and adults with autism need and demand extreme consistency in their environment and daily routine. Slight changes can be extremely stressful and lead to outbursts

Repetitive behaviors can take the form of intense preoccupations, or obsessions. These extreme interests can prove all the more unusual for their content (e.g. fans, vacuum cleaners or toilets) or depth of knowledge (e.g. knowing and repeating astonishingly detailed information about Thomas the Tank Engine or astronomy). Older children and adults with autism may develop tremendous interest in numbers, symbols, dates or science topics.

#Disabilitywatch #AutismDay #disabilityawareness #Disacare

Cerebral Palsy

 What is Cerebral Palsy all about?

Cerebral Palsy is a neurological disorder caused by a non-progressive brain injury or malformation that occurs while the child’s brain is under development. Cerebral Palsy primarily affects body movement and muscle coordination. Though Cerebral Palsy can be defined, having Cerebral Palsy does not define the person that has the condition.

Cerebral Palsy is a blanket term commonly referred to as “CP” and described by loss or impairment of motor function, Cerebral Palsy is actually caused by brain damage. The brain damage is caused by brain injury or abnormal development of the brain that occurs while a child’s brain is still developing — Pre (before birth), Peri (during birth), or Post (immediately after birth). It affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. It can also impact fine motor skills, gross motor skills and oral motor functioning.

How does Cerebral Palsy occur?

Cerebral Palsy is the result of a brain injury or a brain malformation. Individuals with Cerebral Palsy were most likely born with the condition, although some acquire it later.
It was once thought that Cerebral Palsy was caused by complications during the birthing process. While this does happen, it is now widely agreed that birthing complications account for only a small percentage, an estimated 10 percent, of Cerebral Palsy cases.
Current research suggests the majority of Cerebral Palsy cases result from abnormal brain development or brain injury prior to birth or during labor and delivery. Accidents, abuse, medical malpractice, negligence, infections, and injury are some known risk factors that may lead to Cerebral Palsy.

Does Cerebral Palsy causes physical impairment?

An individual with Cerebral Palsy will likely show signs of physical impairment. However, the type of movement dysfunction, the location and number of limbs involved, as well as the extent of impairment, will vary from one individual to another. It can affect arms, legs, and even the face; it can affect one limb, several, or all.
Cerebral Palsy affects muscles and a person’s ability to control them. Muscles can contract too much, too little, or all at the same time. Limbs can be stiff and forced into painful, awkward positions. Fluctuating muscle contractions can make limbs tremble, shake, or writhe.
Balance, posture, and coordination can also be affected by Cerebral Palsy. Tasks such as walking, sitting, or tying shoes may be difficult for some, while others might have difficulty grasping objects.
Other complications, such as intellectual impairment, seizures, and vision or hearing impairment also commonly accompany Cerebral Palsy.
  
How unique is Cerebral Palsy to the individual
Every case of cerebral palsy is unique to the individual. One person may have total paralysis and require constant care, while another with partial paralysis might have slight movement tremors but require little assistance. This is due in part by the type of injury and the timing of the injury to the developing brain.

Is Cerebral Palsy non-life-threatening?

With the exception of children born with a severe case, Cerebral Palsy is considered to be a non-life-threatening condition. Most children with Cerebral Palsy are expected to live well into adulthood.

Is Cerebral Palsy incurable?

Cerebral Palsy is a damage to the brain that cannot currently be fixed. Treatment and therapy help manage effects on the body.

Cerebral Palsy is non-progressive but permanent

The brain lesion is as a result of a brain injury which occurred once and will not produce further degeneration of the brain. The injury and damage to the brain is permanent. The brain does not “heal” as other parts of the body might. Because of this, the Cerebral Palsy itself will not change for better or worse during a person’s lifetime. On the other hand, associative conditions may improve or worsen over time.

Cerebral Palsy is either contagious nor communicable

Cerebral Palsy is caused by damage to the developing brain. Brain damage is not spread through human contact. However, a person can intentionally or unintentionally increase the likelihood a child will develop Cerebral Palsy through abuse, accidents, medical malpractice, negligence, or the spread of a bacterial or viral infection.

Is Cerebral Palsy manageable?

The impairment caused by Cerebral Palsy is manageable thus treatment, therapy, surgery, medications and assistive technology can help maximize independence, reduce barriers, increase inclusion and thus lead to an enhanced quality of life.

Is Cerebral Palsy chronic?

The effects of Cerebral Palsy are long-term, not temporary. Any individual diagnosed with Cerebral Palsy will have the condition for their entire life. Every case of Cerebral Palsy is unique to the individual. One person may have total paralysis and require constant care, while another with partial paralysis might have slight movement tremors but require little assistance. This is due in part by the type of injury and the timing of the injury to the developing brain.


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